I’m going to Brooklyn today with Erica for her tattoo appointment. I woke up, showered, and then threw up bile. That was one of my first symptoms of relapse in the first place. Yesterday my appointment went well, I’m preparing to go back on birth control so my body acts normally even though chemo likely destroyed my ovaries. (Thank fuck I froze eggs.) I was told I’ll be on preventative meds through the 6 month mark. They made an appointment for me for June 10th and I don’t have to be on contact precautions for that appointment! They basically said restrictions can end at the 3 month/90 day mark, not the 100 day mark. I may not be having scans anymore, either. I’ll be having a pulmonary function test and an echocardiogram one to two times per year for the rest of my life. Normal chemo/radiation regimens end with scans at 0, 6, 12, 18, and 24 months. A scan is what caught my relapse. No scans makes me very nervous. My NP explained that if I do relapse, I will likely know again this time and they will actually listen to me this time and scan me immediately.
I was told to give my brain a full 6 months to recover from the last chemo infusion before I try and return to school. My school gave me an additional extension, so I’m all set on that end. The last thing I need to do is stress out.